Tuesday, July 6, 2010

You have a chance to help disabled kids, for free

Imagine that a baby girl is born, beautiful and healthy. She grows, thrives, learns, develops, and then one day it is all taken away and replaced with inconsolable crying. Months go by and she is now unable to walk, crawl, feed herself, flip through her board books and the words that she had are now gone. Then seizures set in, growth failure, scoliosis, breathing problems, and GI disturbances. What happened? Rett Syndrome.

My daughter, Sara, and I live in Lyman, SC. Sara was born in Greenville and seemed perfectly healthy. We soon discovered that Sara and thousands more children, have Rett Syndrome. My daughter has never been able talk, walk, crawl, stand, sit on her own, she has seizures, severe scoliosis, bad reflux and a feeding tube because she chokes on her food. She went into septic shock and cardiac arrest for five minutes back in April. Thankfully, God and the doctors at Greenville Memorial Children's Hospital brought her back to us. Despite all her issues Sara is always happy, laughing, smiling and giving hugs and kisses. She tries so hard to talk to us. She enjoys school and being around people. She loves music and care bears.

There is no cure for her condition, but in 2007 scientists found a way to reverse Rett in mice. Mice who were near death were within a few days, healthy and running around. We need your help. There is a contest by Pepsi going on. The top two charities will win $250,000! The Pioneer Fund in Denver has announced that If Rett wins the Pepsi contest they will also donate $250,000, for a total of $500,000 going to research! Rett Syndrome Research is also finding new info on other conditions, such as Bi-polar, Schizophrenia, Parkinson's and Alzheimer's. Rett Syndrome is the first and only neuro-developmental condition that is close to a cure. We NEED to do this. We CAN do this. With your help.


How can YOU help?
You have a free, easy and quick way to help thousands of sick and disabled people. Simply go to the Pepsi contest website, log in and vote everyday in July. I promise you will not get emails from Pepsi. Pass the link onto other people around Greenville,Spartanburg and beyond and ask them to vote as well. You can even copy this letter and pass it along or post it for others to see. My daughter almost died from complications of Rett Syndrome in April. Please help Sara and all the other little girls and women like her. Thank you.

Vote Here: http://www.refresheverything.com/search/?q=rett

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