Newspaper story, CMN, and Your Carolina

The Travelers Rest Monitor printed Saras story today! It is beautiful and a long article too. On October 28th, Sara and I will be doing an Interview on Your Carolina about Rett. I'm nervous about that one! We went a couple weeks ago to record her story for The Children's Miracle Network, and they also did a little video. It is so amazing that after years of trying to spread the word, things are finally happening.
I wish that Sara did not have Rett, but she does. I'm not seeking attention for her or myself, but seeking attention for all the girls who suffer from the rett monster. My wish is that one day, these girls will talk again, stand again, take a step or even hold a toy and play. Rett has been described as the Rosetta stone for brain disorders and scientists believe it will be the first condition to be cured, and will unlock more information about other disorders like Autism, Parkinson's, Bi-Polar, and Schizophrenia. This is why we are asking folks to vote for the research money.
You can vote at the website www.refresheverything.com/search/?q=rett
You can login in there or log in using facebook
You can also vote by texting 100842 to number 73774
Please vote each day in July and August and ask others to as well. If you want to see pictures and read about other girls who have Rett, pleace visit our facebook group www.facebook.com/group.php?gid=112340235482576&v=info

You have a chance to help disabled kids, for free

Imagine that a baby girl is born, beautiful and healthy. She grows, thrives, learns, develops, and then one day it is all taken away and replaced with inconsolable crying. Months go by and she is now unable to walk, crawl, feed herself, flip through her board books and the words that she had are now gone. Then seizures set in, growth failure, scoliosis, breathing problems, and GI disturbances. What happened? Rett Syndrome.

My daughter, Sara, and I live in Lyman, SC. Sara was born in Greenville and seemed perfectly healthy. We soon discovered that Sara and thousands more children, have Rett Syndrome. My daughter has never been able talk, walk, crawl, stand, sit on her own, she has seizures, severe scoliosis, bad reflux and a feeding tube because she chokes on her food. She went into septic shock and cardiac arrest for five minutes back in April. Thankfully, God and the doctors at Greenville Memorial Children's Hospital brought her back to us. Despite all her issues Sara is always happy, laughing, smiling and giving hugs and kisses. She tries so hard to talk to us. She enjoys school and being around people. She loves music and care bears.

There is no cure for her condition, but in 2007 scientists found a way to reverse Rett in mice. Mice who were near death were within a few days, healthy and running around. We need your help. There is a contest by Pepsi going on. The top two charities will win $250,000! The Pioneer Fund in Denver has announced that If Rett wins the Pepsi contest they will also donate $250,000, for a total of $500,000 going to research! Rett Syndrome Research is also finding new info on other conditions, such as Bi-polar, Schizophrenia, Parkinson's and Alzheimer's. Rett Syndrome is the first and only neuro-developmental condition that is close to a cure. We NEED to do this. We CAN do this. With your help.


How can YOU help?
You have a free, easy and quick way to help thousands of sick and disabled people. Simply go to the Pepsi contest website, log in and vote everyday in July. I promise you will not get emails from Pepsi. Pass the link onto other people around Greenville,Spartanburg and beyond and ask them to vote as well. You can even copy this letter and pass it along or post it for others to see. My daughter almost died from complications of Rett Syndrome in April. Please help Sara and all the other little girls and women like her. Thank you.

Vote Here: http://www.refresheverything.com/search/?q=rett