Wednesday, July 28, 2010

Newspaper story, CMN, and Your Carolina

The Travelers Rest Monitor printed Saras story today! It is beautiful and a long article too. On October 28th, Sara and I will be doing an Interview on Your Carolina about Rett. I'm nervous about that one! We went a couple weeks ago to record her story for The Children's Miracle Network, and they also did a little video. It is so amazing that after years of trying to spread the word, things are finally happening.
I wish that Sara did not have Rett, but she does. I'm not seeking attention for her or myself, but seeking attention for all the girls who suffer from the rett monster. My wish is that one day, these girls will talk again, stand again, take a step or even hold a toy and play. Rett has been described as the Rosetta stone for brain disorders and scientists believe it will be the first condition to be cured, and will unlock more information about other disorders like Autism, Parkinson's, Bi-Polar, and Schizophrenia. This is why we are asking folks to vote for the research money.
You can vote at the website www.refresheverything.com/search/?q=rett
You can login in there or log in using facebook
You can also vote by texting 100842 to number 73774
Please vote each day in July and August and ask others to as well. If you want to see pictures and read about other girls who have Rett, pleace visit our facebook group www.facebook.com/group.php?gid=112340235482576&v=info

1 comment:

  1. AWESOME!!! Sarah...you rock! Hugs to you from my Rett Angel Brooklyn!

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